Long story, so let me share the basics. After my last hospital stay, I was released with the diagnosis of acute hepatitis. They did not know what kind or how I got it, and all the tests were not complete yet. So I was to go back and see the so called “liver specialist” that saw me in the hospital, several weeks later. Turns out, he was out on vacation then and I left a message to set an appointment. Now I’m told he will not and cannot treat me, cause…
A) I tested positive for Hepatitus C, which, he does not treat. (Helloooo, news to me, was anyone going to share that info with me?) and B) I cannot see another doctor under his medical umbrella (gastro group) cause I once saw another doctor (who is refuse to do business with) in the group which must consist of the majority of gastro docs in DFW. Needless to say, I’m searching for a liver specialist who treats Hepatitus C and is in a different group.
“Hepatitis C is a liver disease caused by the hepatitis C virus (HCV). The infection is spread by contact with the blood of an infected person. Serious for some, but not others, most people who get hepatitis C carry the virus for the rest of their lives. Most have some liver damage but many do not feel sick from the disease.
As a result of the liver damage, cirrhosis (scarring) of the liver and liver failure may develop. For a slight majority of patients, the illness begins suddenly as though one had come down with the flu. Except that this “flu” doesn’t seem to completely go away. For many other patients, the onset appears gradually over a long period of time. Infants and young children often have no symptoms at all.
Many other symptoms may also be present, however they will typically be different among different patients. These include: fatigue, low-grade fever, headaches; slight sore throat, loss of appetite, nausea, vomiting, stiff or aching joints, and liver damage. Many people develop a pain in the right side, over the liver area. The urine may become dark brown, and the feces may be pale. In severe acute infections, some people may develop jaundice in which the skin and whites of the eyes become yellowish.
The degree of severity from Hepatitis C can differ widely among patients, and will also vary over time for the same patient. Severity can vary between getting unusually fatigued following stressful events, to being totally bedridden and completely disabled. The hepatitis c symptom has a tendency to wax and wane over time.”
I have had some recent not so wonderful symptoms and had a CT scan done the other day. I will have to go back for another one with IV contrast for a better picture. The radiologist saw something in the films but its so non specific that I won’t use the medical terminology. Does not tell me much at this point, it could mean a number of things. Hopefully I can find a doctor that can make sense of this all, and wheither its related or not, treat me accordinly.
In case you were wondering… “HCV is not spread by sneezing, hugging, coughing, food or water, sharing eating utensils or drinking glasses, or casual contact.”
Filed under: Health, Health Resources, Liz, Medical Report













We are praying that one of your medical contacts can refer you all to just the right doctor for someone to get you on the riught treatment asap!
Good grief. What a pain. Why is the medical field so complicated?
I’m sorry you’re having to go through all this. We’ll be praying that the right doctor and treatment will present themselves.
Hello Elizabeth.
I am a mother of 2 who was diagnosed with Hep C about 6 years ago. They do not know how I contracted it, as I am not in any high risk groups. I read about what you are going through and I can sympathize. You are very brave for sharing so much of your life with strangers. God is going to use you in mighty ways. Your story touched me. It made me feel like I wasn’t alone. I don’t share my condition with many because I am afraid they will treat me differently. Most people are not educated about Hep C so they are quick to put me into the “user” catergory. (Which is not at all true) Again thank you for being so transparent. You and your family will be in my prayers.
-Amber